Author: Michael

The Problem of Lady Gaga

Firstly, Lady Gaga is amazing. She is supremely talented. While I’m not a fan of overproduced pop, her live performances prove that she can really bring the goods. She is also a brave strong woman. For many people, she is the face of Fibromyalgia. From the perspective of the chronically ill community, this is a mixed bag. One one hand, it’s fantastic to have a popular name associated with an under-represented illness is great for public awareness. On the other hand, she’s much more functional than the majority of people with fibro. By having a highly functional high-energy person...

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Hope could not reach them

Dr. Jose Montoya, head of the ME/CFS initiative at Stanford, gave a talk yesterday. I  started streaming it online, but then unfortunately got pulled away. I did glean a little bit of data however; That the life expectancy of ME/CFS patients is 55 years. I’m 45 years old. That gives me another 10 years. (yeah, no guarantees either way, I know). I suppose I should be shocked by this information. I should at least be a little terrified. I’m neither. He also mentioned how some of his patients had taken their own lives, or rather, he said “hope could not reach them”. Hope could not reach them. There is so much pain in that phrase. There wasn’t a shred of judgment in his voice, just the sad acknowledgment of loss with an inflection that said “I get it”.  A lot of people with CFS, Lyme, and related diseases commit suicide. I’ve seen the number stated as 7 times the average, or 30%.  Sounds about right. I don’t plan on joining those numbers. For really only two reasons. My parents are still alive, and I’d never do that to them, and because hope still reaches me. I see the research teams all over the world, in the US, Norway, Australia etc, moving both so quickly and yet so painfully slowly. Each time a study is launched, I feel like someone holding...

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The Criminality of Gwyneth’s Goop and her “Medical Medium’s” lies about EBV

I was just reading up on Jessica Flanigan’s take on the AIP (Autoimmune Paleo) diet, and followed one of her links to a”must read” article on Gwyneth Paltrow’s infamous Goop blog on EBV. Most people know of EBV as the Mono Virus. The vast majority of people come into contact with it during their lives, It’s extremely common.It’s also linked as a common trigger of CFS. I was genuinely confused reading this article. This article reads alike a game of two lies and a truth. It sprinkles just enough factual information that the writer has the appearance of being an...

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Supplement Guide

Natural Calm, Calmful Sleep:Magnesium, GABA, L-Theanine, Melatonin I’m semi-addicted to this stuff. It has Melatonin to help you sleep, and Magnesium with helps with stress and is an essential suppliment for cfs. It also has GABA and L-theanine to help with anxiety. It’s tart if you like that kind of thing. Drink it at bedtime. Jarrow Formulas Curcumin 500MG Curcumin has recently been shown to reduce inflammation. My CFS doctor recommends 2x a day Doctor’s Best Coq10 100mg This is a pretty standard recommendation. It reduces inflammation and is important for heart health. According to this study It’s well tolorated in high doses, but consult your doctor for recommendations Jarrow Methyl Folate400Mcg MethylFolate is a requirement if you have the MTHFR mutation (many of us do) ProHealth:NADH 12.5mg NADH is used for improving concentration, alertness, and cognitive ability Jarrow Formulas:Methyl B12 500mcg Methlyl B12 This is essential for nervous system function. Make sure to get the Methyl variety as it is more readily absorbed than cyanocobalamin Bulk Suppliments Pure D-Ribose powder D-Ribose looks and tastes like sugar, because that’s essentially what it is (but a special kind). It helps many CFS patients with energy. Bonus: You can use it in your coffee Puritan PrideMelatonin 10mg Melatonin is a hormone naturally produced by our bodies at night time. Many people find that melatonin suppliments fascilitate sleep. Note:Calm (listed above) already contains Melatonin,...

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